| 16–18 November 1984 in Trondheim
(Norway) |
Discussions on the idea of an umbrella
organisation for the ankylosing spondylitis societies in different
countries among Fergus Rogers (UK), Dr. Heinz Baumberger (Switzerland),
Anita and Christer Berg (Sweden), and Roar Aspen (Norway) on the occasion
of a patient symposium organised by Dr. Øistein Romberg |
| 19 March 1986 in London |
Ernst Feldtkeller visited Fergus Rogers in London. Discussion
on the reason and possibility of an international umbrella organisation |
| July 1987 |
Fergus Rogers discussed the question with lawiers in the
UK and distributed a draft constitution. |
| 19 March 1988 in Vienna (Austria) |
On the occasion of the General Meeting of the Austrian
AS society , ÖVMB chairman Franz Kaltenbrunner invited Fergus Rogers,
Dr. Heinz Baumberger (Switzerland), Herbert Hümmer and Prof. Ernst
Feldtkeller (Germany) and Alois Poglitsch (Austria) to discuss some questions
concerning the intended organisation. |
| 10 April 1988 in Bath (England) |
Inaugural Meeting in connection with a symposium
of the National Ankylosing Spondylitis Society. See
details and photo. |
| June 1989 |
ASIF registered as Charity No. 801 482 by the British
Charity Commissioners |
| 7–10 July 1989 in Leukerbad (Switzerland) |
1st Council Meeting in connection with
an excursion to Zermatt and the Gornergrat with view to the Monte Rosa
glaciers. See details and photos. |
| 31 December 1989 |
First "President's Report" distributed to all known
AS societies, including a collection of data on each AS society
prepared by Prof. Ernst Feldtkeller. |
| March 1991 |
ASIF leaflet printed for distribution at rheumatology
congresses,, with addresses of all ankylosing spondylitis societies worldwide
on an exchangeable extra sheet |
| 14–17 October 1992 in Bad Gastein (Austria) |
2nd Council Meeting including a public symposium
on ankylosing spondylitis and a visit to Gastein's "Heilstollen" gallery
where AS is treated by the combination of heat, high air humidity and
radon inhalation. See details and photo |
| 26 March 1994 in Estoril (Portugal) |
Meeting of the Executive Committee for preparing
the 3rd Council meeting. |
| 13–14 November 1994 in Estoril (Portugal) |
3rd Council meeting with agreements on two ASIF
research projects. Excursions led to the Sintra mountains and to Cabo
da Roca. See details and photo |
| 8–9 March 1996 in Oslo (Norway) |
Meeting of the Executive Committee for preparing
the 4th Council meeting. |
| 29 August – 1 September 1996 in Hafjell near
Lillehammer (Norway) |
4th Council meeting with the presentation of preliminary
results of the ASIF research projects on pregnancy with AS and on car
driving with AS. See details and
photos |
| 18–21 September 1996 in Bamberg (Germany) |
ASIF web-site with information on all AS societies
world-wide. Rheumatologists of the University of Düsseldorf
presented their "RheumaNet" at the annual congress of the German Society
of Rheumatology and offered memory space also for web-sites of national
or international patient organisations of rheumatic diseases. The ASIF
vice president immediately used this opportunity as a host for an ASIF
web-site. |
| 1997 |
Booklet on "Car Driving with Ankylosing spondylitis"
by Dr. Jon Erlendsson published in Danish language. Translation into English
language published in 1998, translations into Portuguese and Japanese
language in 1999, into Czech language in 2002, and into German language
in 2003.. |
| January 1998 |
Under the title "Ankylosing spondylitis
– the female aspect", a report on results of the ASIF survey on ankylosing
spondylitis and pregnancy by Monika Østensen and Harald Østensen
appeared in Journal of Rheumatology 25 (1998) 120–124 |
| 2–5 September 1999 in Orscholz (Germany) |
5th Council meeting with delegates from 17 countries
with presentation of research results of a large survey on the situation
of AS patients in Germany. See details
and photos |
| 10–13 October 2002 in Portorose (Slovenia) |
6th Council meeting with delegates from 12 countries.
Retirement of ASIF president Fergus Rogers and ASIF secretary Nils Linholm.
Election of Soeirse Smith (Ireland) as new ASIF president and Ken Mulholland
(Canada) as ASIF secretary. Presentation of results of ASIF project on
differences between HLA-B27 positive and negative patients with AS. See
details and photos |
| December 2003 |
ASIF News No.
1 distributed, with reports on EULAR congress 2003 and ASIF research
on HLA-B27 negative compared to positive patients with AS |
| December 2004 |
ASIF
News No. 2 distributed, with invitation to the 7th ASIF
Council meeting, with reports on the EULAR Congress 2004 in Berlin (Germany),
on an international AS symposium in Bad Gastein (Austria), on the new
AS society in Turkey, on a Canadian Arthritis Research Forum, and on the
4th international SpA congress in Gent (Belgium), with the history of
Apa Bane, a Koptic Saint with ankylosed spine in the 4th century AD, with
an article on "Therapy of ankylosing spondylitis 4000 years ago", and
with the results of the ASIF survey on "Vertebral fractures in patients
with ankylosing spondylitis". |
| 8–11 September 2005 in Sandbjerg (Denmark) |
7th Council meeting with delegates from 16 countries.
Retirement of Soeirse Smith as ASIF president. Election of. Dr. Jon Erlendsson
(Denmark) as new ASIF president, of Torben Jørgensen as new treasurer,
and of Martine Roch (France) as new member of the ASIF Executive Committee
(See details and photos). |
| February 2006 |
ASIF is accessible under the new Internet homepage
address www.spondylitis-international.org |
| February 2006 |
ASIF News No.
3distributed, with a report on the 7th Council meeting held in
Sandbjerg (Denmark), with an obituary to Nils Linholm (past ASIF secretary),
with a report on the AS society in Iran, with the ASAS/EULAR recommendations
for the management of AS, with the results of a survey on the disease
activity and treatment of AS in Germany, and the results of a pilot study
on the Neurocognitive therapy of AS. |
| October 2006 |
ASIF News No.
4 distributed, with announcement of the 8th ASIF Council
meeting to be held in Czechia, with reports on the Social Leagues of EULAR,
on the EULAR Congress 2006 in Amsterdam (Netherlands), on contacts to
the Icelandic spondylitis branch, on contributions to easy diagnosis of
early ankylosing spondylitis, and with a lecture on the goals of spondylitis
patient organisations |
| March 2007 |
ASIF News No.
5 distributed, with 2nd announcement of the 8th ASIF Council
meeting to be held in Jáchymov, with contributions on Fergus Rogers
remembered and an Obituary printed in The Times, with a profile of new
NASS director Jane Skerrett, with a report on the ASIF vice president
celebrating 75 years, with his experiences as a 75 years old AS patient,
and reports on the SpA congress 2006 in Gent (Belgium) and the ASAS workshop
2007 in Bath (UK) |
| April 2007 |
Meeting of ASIF president and vice president with
the Organising Committee for the 8th ASIF Council meeting to be held
in Jáchymov |
| 6–9 September 2007 in Jáchymov (Czechia) |
8th Council meeting with delegates from 17 countries.
Proposal of a research prejects on recommendations for the management
of AS, proposal of another research project on the influence of TNF-alpha
blockers on the outcome of pregnancies, presentation of recent results
of ASIF research and of copyright regulations for reprinting articles
and artwork, and reports from member societies. Retirement of Soeirse
Smith as member of the ASIF Executive Committee and election of Jane Skerrett
as new member of the ASIF Executive Committee. (See
details and photos).. |
| November 2007 |
ASIF News No.
6 distributed, with Report on 8th ASIF Council meeting held in
Jáchymov, with contribution on copyrith matters to be regarded
by editord of AS membership journals, with a report on the EULAR congress
2007 in Barcelona, and a notice on the Kussmaul medal awarded to the ASIF
vice president by the German Association of Rheumatology |
| 27–28 February 2008 near Zürich, Switzerland |
Common ASAS-ASIF workshop in the EULAR house in
Kilchberg, with patients with ankylosing spondylitis from 10 countries
(Belgium, Canada, Germany, Great Britain, Ireland, The Netherlands, Portugal,
Romania, Switzerland, and Turkey) participating, to assess and translate
the ASAS/EULAR recommendations for the management of AS from medical language
into a “patient-friendly” language.. |
| April 2008 |
ASIF News No.
7 distributed, with announcement of next ASIF council meeting
to be held in Austria, a report on the ASAS workshop of January 2008 in
Toronto, a report on the common ASAS-ASIF workshop in the EULAR house
near Zürich, a report on the Patient Associations’ Best Practice
Meeting 2008 in Helsinki, a report on the situation of patients with AS
in Japan, a report on the new AS society in the Republic of Moldavia,
and scientific contributions by ASIF vice president Ernst Feldtkeller
and NASS director Jane Skerrett |
| 26 August 2008 in Düsseldorf, Germany |
Members of the Steering Committee of the Assessment of
Spondyloarthritis international Society (ASAS) invited 12 patients
with AS from Canada, Germany, Great Britain, the Netherlands, Switzerland,
Turkey and USA, to contribute to the creation of an ASAS Quality of
Life questionnaire |
| October 2008 |
ASIF News No.
8 distributed, with a report on the ASAS-ASIF workshop held in
Düsseldorf, articles on the efficacy of the combined radon inhalation
and hyperthermia treatment in Gasteins therapy gallery and on the evidence
of physical therapy and patient education, and with reports on patient
activities in Canada and Germany. |
| June 9-10th, 2009 |
Meeting of the ASIF Executive Committee at Hotel
Denmark and Bella Centre, Copenhagen, Denmark, on the occasion of the
European Congress of Rheumatology (EULAR Congress) for preparing the 2009
Council meeting. |
| October 15–18, 2009 in Bad Hofgastein, Austria |
9th ASIF Council meeting with delegates from 18
countries. Presentation of recent results of ASIF research. Reports on
awareness campaigns in some member societies. Presentation of a video
on managing patients with AS in an emergency setting. Lectures on spinal
fractures in patients with AS and on multimodal treatment strategy including
patient education. Visit to Gasteiner Heilstollen. Election of Soeirse
Smith as ASIF president and of Hedley Hamilton as ASIF vice president.
Election of Dr. Tuncay Duruöz as new member of the ASIF Executive
Committee. (See details and photos).. |
| November 17-20, 2011 in Izmir, Turkey |
10th ASIF Council meeting with delegates from 15
countries. Approval of the new society memberships from China, South Korea
and Cyprus. Election of Michael Mallinson as the new secretary and René
Bräm as the new treasurer. Presentation of the Asleep project and
the planning of the new ASIF website. Lectures of approved therapies in
AS, cardiovascular training, the changing profile of exercise group as
well as genetic research developments. Visit to Ephesus & Pamukkale
- UMUT Thermal Resort.
(See details and photos) |
